In past posts, I’ve ranted about resistive vs capacitive screens for typing. Apple’s phone and tablet are great, but as a quad with poor hand function, most will prefer to use a finger nail to type. On my Nokia 5800 this works well and the new firmware has better smooth scrolling (inertia in the flicking though contact list for example).

Some technology that came from eye tracking has seen new use on tablets and phones. See full review of Swype at arstechnica.com. I think this is going to solve many disability related text input problems. Voice dictation is king, but to manage most applications, we need a pointer. A quadriplegic needs to keep a finger on the screen and not lift it. Hunt a peck is too problematic and nearly impossible if moving, say on the bus.

Now, my next phone/tablet won’t be an Apple — as much as I do love there products. Android is gaining ground, and as long as they don’t get the same fragmentation that J2ME had, well.. I’m betting an open development platform will eventually win out. slowly eating away at RIM, Nokia, J2ME too. As a developer, you are forced to choose what platform to build your app for. This why companies like PhoneGapare getting lots of attention. New frameworks for doing HTML5 and Java Script continue to improve and touch/gesture commands as well.

So, the future is bright for better input devices for quadriplegics.

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It’s now 2010… So, where’s my jet pack?

Disability research integration is not happening. Not like it needs too. I’ve seen the problem from several points of view now and feel justified in a little rant. Scientists generally hate mixing with business, but this is the reality. The business of keeping a lab open and publishing regularly is difficult and in direct conflict with the new buzz words: “Community Driven, practical solutions” which are ignored when the main funding sources want cures worthy of the cover of Time Magazine.

I raised money and ran for Rick Hansen back in the 80’s. The talk back then was “one day soon, they’ll be able to fix spinal cords.” My injury was in 1994 and I still hear “five, ten years guys, stay healthy because the cure is coming.” Showing the above video to a friend got this response…”but on side note they did seem genuine, and nice people (for whatever that means or is worth)”. The reason solutions take so long is simple: follow the money. Sad but true.

The SCI community requests are simple. Blader, bowel, and sex. Motor control almost always comes after these basic human functions. We want to feel normal again. There are lots of web forums where SCI communities can share information and personal experiences, but rarely will there be a real doc or even a PhD in there to bring the newly published info to the group.

What to do when community needs are ignored because the research funding goes to the “glamorous science?” Tough spot. My point is that we are getting slowed down for the wrong reasons. We should be much further along by the year 2010, but political pressure needs to be applied to science and educational organizations. The scientific community is well known to have a horrendous record for conflicts of interests so despite good intentions talk will continue to be just talk. So screw the jet pack, I’d just like to feel normal on date nights again, which if anyone cared to look it up was far above walking when you ask people living with SCI.

So, what we are really looking for is publications this from DHRN

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I’ve been following Boston Dynamics awhile now. They seem to be the most sable legs around.

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uncle bens, grand wall, squamish

From Uncle Ben’s Climb 19/07/09 2:21 PM (new photos added)

Brad and Dave on the “Uncle Ben’s” route. This roof section was chosen as a testing grounds for larger climbs in California. We were “lucky” to some get strong wind on this day. Instead of suffering in hot sun all day, we froze instead… but could get good understanding of how the rig does in real weather. Was enough wind to make communication difficult and ropes frustrating to manage.

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Well, it happens. Sometimes our partners let us down sexually, but a vibrator should never fail, should never leave you pent up and stressed. The low end (under 100 dollars) vibrators are reliable because in the volumes they sell there must be quality control. But in SCI (spinal cord injury) we get the shaft. Small population of users, so highly priced equipment. The lower volume of sales, means the manufacturer requires higher margins — basic economics. The best solution is a mass produced device that works for everyone with simple adjustments, but that is asking for allot actually.

Reading about vibrator quality from a male quadriplegic seems a touch odd to you? Well, that is why I’m writing about it. After a spinal cord injury we really just want to feel normal, and the basic bodily functions are a always affected. Worse, some folks with spinal cord injuries simply cut off sexual activities because they don’t dare mess with Autonomic_dysreflexia (AD), or are embarrassed about the topic in general. (quads are strongly warned about AD in rehab)

The good news is that even long after in injury, the body can be retrained. With the right feedback, this can be done safely and gets easier over time. I’m almost 15 years into my injury and only getting a proper education now, and I’ve had to do much on my own because apparently this is taboo. Yes it may sound strange to overhear a few guys in chairs talking about their erections, volume and color of loads, but really… that is what much of our happiness and fears center around. Stay tuned on this thread and I’ll give advice on how to get away from relying on the blue pill on date nights. Think able bodied sex can be intimidating and nerve wracking regarding performance, well SCI adds a whole new level of complexity and potential risks (AD, embarrassment)

Enter the Ferticare: an over-priced vibrator that will let you down. At 800 bucks, this is a painful purchace and even worse thing to RMA. If you are used to the medical benefits of ejaculation, not having your device for a few weeks, or even months, is a real problem. It is not the motor, but some cheap battery and charger parts and charging issues. So, the warranty is up on mine, it won’t charge so… WE FIX. Because this is considered a “Medical Device” it can’t use power from the wall, but there is no reason to skimp on power — clearly more power is better? No, actually not. What makes this vibrator different is the ability to change both the frequency and amplitude to tune it to the signal that works for you. You should see your Doctor before inducing AD (see Boosting).

So, this page will hold the efforts to make a smarter vibrator for Quadriplegics, and I’ll give away a hint… controlling the speed of the device from Heart Rate and Blood Pressure is the key to being able to successfully ejaculate regularly. (must be on a regular basis to get the benefits). I will post my Heart Rate and Blood Pressure data here as I test if ejaculation is better than Boosting. In other words, does this routine help fitness? Most say it makes them tired, but what it does do is limit muscle spasm when I reach my max heart rate of 120 beats per minute. This lets me continue when I’d ordinarily get shut down. We already know that vibration stimulation can raise pressure in the arteries for a short time and this can mitigate OH (dizziness when sitting up, common in rehab). Also, regular ejaculation helps prevent “retraction” as well. Retraction really freaks people out because with AD setting in, the penis can be pulled right inside one’s body. In many cases this means the person’s condom drainage pulls off and they wet their pants — very embarrassing.

More info in this article on disaboom regarding SCI and Sexual function

Please share links to SCI forms on this topic if you have them,Thanks.
Brad

Related devices:

  1. sex chair
  2. erection support device
  3. sex positioning pillows
  4. real touch (world’s first robotic vagina)
  5. TED talk on Medical Inventing


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dk

Now we are in a European Disability Sport Magazine. The Author has given me a rough translation in English. I’ve found many good articles in this magazine, and found that Google translation to be good enough to get the main points. It was great getting more press around the world. There are so many good rehab and sports programs and publications in Europe, it would be great to take the rig there and do more after Elcap.

Thank you

Janke Bondam of ryk.dk
Copenhagen
Denmark

The Cliff Hanger

It is only the imagination that puts a boundary for what the sport of extremes can consists of, where it can take place, how it unfolds and who does it. And what only the very few could ever in their wildest imagination think doable, the extraordinary climber, Canadian Brad Zdanivsky, made possible in the summer of 2005.

The achievement was the climbing of The Grand Wall which was literal speaking a vertical 700 m high mountainside called The Chief near Squamish in West Canada, and the fact was, that Brad Zdanivsky is a quad after a car crash. How this climbing actually was done, you could that summer read in The Globe & Mail.

Brad Zdanivsky, who is 32 by now, was 18 when he broke his neck. Before that he was a keen climber, and from the age of 15 he had reached the first stages of what you could call advanced climbing. He had it in his genes, climbing was for him like renewing the oxygen in his blood. So what do you do when you break your neck and still want to be a climber? You put you thinking cap on and start to solve the problems.

Brad and his father, who was a keen climber himself, designed after years and years of thorough researches and checks – and a lot of money – a climbing “thing”, which they got a professional company to construct so both security and comfort was in order. It consists of a frame with a seat. Above are two bicycle-like wheels and underneath on the inside is a smaller wheel to prevent him from banging into the mountain side. He is fixed to the climbing “thing” – as he called it – and with his tied hands he can pull himself up with some pulley-device. About 30 cm for every pull.

When Brad climbed The Grand Wall in 2005 a team of volunteering climbers and friend was with him making it possible for him to climb the vertical mountain side. He started early in the morning, and fourteen hours later he had reached the top. An extremely exhausting achievement. A helicopter brought him down again. Even for an experienced climber The Chief is said to be an ordeal of the rather heavy ones. The feeling of victory after having achieved the goal not only made his climber-heart beat but it let project Vertical Challenge come into being, whose goal is to “start a movement that will see more quadriplegics enjoy adventure sports—a realm where people with higher-level spinal cord injuries are currently denied access” which can be read at their web site verticalchallenge.org.

RYK! Magazine has been in mail contact with Brad Zdanivsky to hear more about his climbing.

- I have been climbing since childhood. I always spotted out the highest trees and the steepest cliffs, and from the early teens I saved money for rope and other climbing gears. I started to meet other climbers and by and by the challenges in climbing became more and more difficult. All this amounted to countless adventures in the mountains which naturally game me a deep sense of connection to nature and being out in the wilderness, which has never left me. This is one of the reasons why it is a bit of a challenge to land in a wheelchair, because the outdoor life in the wilderness became practical a close country for me.

I read on a climbing-chat-site that someone had written this quote from Camus “In the midst of winter, I found there was, within me, an invisible summer”, is that something you can relate to?

- Yes, definitely: my climbing is my invisible summer. When I in ’94 crashed with the car I remember that my first thought, that night I was lying helpless across the steering wheel, was, that I will never be able to climb again. The first months in the hospital and later at the rehabilitation centre passed with starring up at the ceiling. The mountains that now needed to be climbed was all about learning to sit upright, get dressed myself, eat by my own doing and a lot of other daily things. The hardest thing for me was to forget who I once was and start trying to concentrate all my energy to return to college, but not even the best academic readings could compensate for my need to be outdoor. So it did not take long before I started to speculate if it was possible for me to return to the walls. I first started with some rappelling which developed more and more like the climbing gears got more and more refined and tailor-made for me, so I was able to use every bit of muscle power I had left. The culmination of all these efforts was reaching the summit of The Chief. Finding my way back to the wall became my invisible summer.

Why do you climb – what do you get out of it?

- Every climber hates that question … we climb because it is fun, is our immediate answer. Being on a challenging adventure in the raw wilderness with friends is really rewarding. Training and organizing to reach a certain goal is what ignites me. I climbed before my accident, so it is only natural that I continue. It is not the same as before concerning grace and power but I am up there on the wall with my friends and that is a fantastic experience. It is the mix of the great efforts, the concentration and the danger that keeps you focused on the here and now, which gives the whole thing an unsurpassed kick.

I can deduct from what I have read about you, that you have it in your blood, – that there is a thrill unmatched by hanging suspended in mid air, – that you simply must be out there, or rather up there. Is it the genes, which are calling?

- Yes, it is worse than this. I feel obligated to do this, that I really have no other choice. That the challenge is so obvious that to not pursuer climbing, would be mean I was beaten. That I’d loose some of my own self-respect. And in many ways you get close to life – being alive – up there on the walls. It is all about hard work, about focusing; focusing on the wall, the next little step and nothing more. It is a slow and calmly activity which has something spiritual about it. The adrenalin is present, needless to say, but you have to have the danger under control. It is extreme presence you sort of get addicted to. And then I have not mentioned the view and the wide open spaces. So maybe one could say that I have something to prove to myself, but really … I want to make this equipment so others can go out and surpass the work we have put into this. But doing this all safely is no small effort.

Have others followed your footsteps; other quads climbing walls?

- Some of my friends in wheelchairs have tried a bit of climbing, but I want to create a program for others to use regularly, as well as make the equipment for others. It is a very low volume sport for those in chairs, simply because mountains rarely have wheelchair access. Worse, the costs are extremely high to design and throw away new gear all the time.

Do you have future climbing plans?

- Yes, the biggest wall I’ve always dreamed about: El Captain in Yosemite National Park in California. It is a life long goal and I will be making attempts soon. We need to control breathing and blood pressure for a quadriplegic in this wild environment. This climb makes the Chief look like cake and ice cream, and literally keeps me awake at night.

RYK! Magazine wishes Brad Zdanivsky all the best of luck with his wild and daring project. We will keep an eye on him and hope he will succeed.

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The iCord building (Blusson Spinal Cord Centre, VGH) has a 3 story ramp and is a perfect test of wheeling ability and fitness.

DR. Andrei Krassioukov measures change in Blood Pressure and Heart Rate in a quadriplegic vs a paraplegic.

Combined Results

T4 Data (normal response)

C5 Data (Post Exercise Hypotension)

Background information on Post Exercise Hypotension

More Information:
Open Source Heart Rate Monitoring
iCord

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